Thursday, June 30, 2011

poem from Karma Jones

"When things go wrong as they sometimes will,
When the road you're trudging seems all up hill,
When the funds are low and the debts are high
And you want to smile, but you have to sigh,
When care is pressing you down a bit,
Rest if you must, but don't you quit.
Life is queer with its twists and turns,
As every one of us sometimes learns,
And many a failure turns about
When he might have won had he stuck it out;
Don't give up though the pace seems slow--
You may succeed with another blow,
Success is failure turned inside out--
The silver tint of the clouds of doubt,
And you never can tell how close you are,
It may be near when it seems so far;
So stick to the fight when you're hardest hit--
It's when things seem worst that you must not quit."

Wednesday, June 22, 2011

Quotes from Karma


Thursday, June 9, 2011

poem by Marianne

Marianne Maserati
You can cry all the tears in your eyes
until all tears are wept.
You can rest all the hours of the day
until all sleep is slept.
You can talk all the words that you know
until all words are told.
You can fight tooth and nail with your will,
hold your head up so bold.

You can take all the drugs on the shelf,
jab your skin till it's raw.
You can spend all the cash in your bank
on a miracle cure.

You can bury your head in some game,
hide a while - for a day.
You can lift up your head to the sky,
find some hope, you can pray.

You can learn all the facts you can find -
all the books you can buy.
You can drink all the booze in the bar,
drain the bottles all dry.

Still the beast feeds itself on your brain
and it won't go away.
And it is you, my friend, understand
that the beast's here to stay.

It's not over for you, not this time,
and you've still much to give.
And there's still so much love in your heart
and so much life to live.

And the beast won't define you at all,
you must be who you are.
In your soul there's a spirit of love
so just make it go far.

we are m.s. by Marianne Maseratti

We are your parents, your children, your brothers and sisters; we are the person down the street; we are that lady or fellow who may walk a little 'funny' at the grocery store. We are the people that you "tsk, tsk" over because we might look "too good" to use a handicapped parking space. We are the folks who may not be able to get out... to the Church or Temple every weekend; we are your peers; we are human beings.

We are the face of Multiple Sclerosis. A face that is nearly every ethnicity; that comes from nearly every country, that does not discriminate by social standing or class or financial or educational background or language or religion. We are both able to walk unassisted and use canes and walkers and wheelchair users; we jog and swim and partake in sports; we are housebound, we use scooters; we need respirators. We are everything in between. We are visually impaired and we are not. We are at every level of physical ability.

Of course, we "look so good" while we're doing it. We hear that phrase every day of our lives. Sometimes that phrase is meant as a compliment and sometimes it is meant to hurt or meant to shame us into doing something of which we may not be currently capable. We may be able to do that something tomorrow, though, or next week; Multiple Sclerosis is like that. We are like that.

Some of us are hearing impaired; yet all of us occasionally have people talk louder to us. "HOW ARE YOU D-O-I-N-G????" they'll scream, speaking to us as though we were either hearing or intellectually impaired. "YOU LOOK SO G-O-O-D!!!!"

Of course we do. Thank you very much. We are, in fact, the very best looking people in the handicapped community. We have secret beauty pageants every year, to decide which of our number is the absolute best-looking. Billy Crystal emcees, as his character Fernando; "..and you look MAHVELOUS my dear; absolutely M-A-H-V-E-L-O-U-S..."

We are brave. We are fragile. We want to live, and we want to end it all. We look for support and we want to stand alone. We are Every person. We are the People with Multiple Sclerosis. We are People, Just Like You....

Thursday, June 2, 2011

Today is not the best

Today is not the best day
Why should I let it stay?
I will choose to chase it away
For MS will not have its way.

I might cry, pout and complain
But really why let it have its way?
MS is not my life, my wants, my desires.
I will not let it beat me down.

I am far more than all of that
I will not succumb to even a "tat
As I feel myself giving into this disease
My mind tries to fight with all its ease.

I fight, scream and fall
"Get me out of this somehow"
MS is not my life, my wants, my desires
I will not let it beat me down.

As I ponder this dilemma
I know that I am in a better place
So change your thinking into good
Then you can go on with your life  just as you should


poem by Tyah

Tyah Butler
I am woman,
Proud and free,
More to me,
Than what you see,
I stand alone,
A world apart,
Just holding fast,
To wayward heart.

I am healer,
Poet too,
I see colour,
Rainbow hue,
All at one,
With God above,
Forever bright,
Eternal love.

I am fire,
Burning gold,
Cold as ice,
If truth be told,
Just a spark,
Light a flame,
Glowing embers,
Die again.

Wednesday, June 1, 2011

Poem by Cathy Herndon...

If Tomorrow Starts Without Me

If tomorrow starts without me, and I’m not there to see,
If the sun should rise and find your eyes all filled with tears for me;
I wish so much you wouldn’t cry the way you did today,
while thinking of the many things we didn’t get to say.
I know how much you care for me, and how much I care for you,
and each time that you think of me I know you’ll miss me too;

But when tomorrow starts without me, please try to understand,
that an angel came and called my name and took me by the hand,
and said my place was ready in heaven far above,
and that I’d have to leave behind all those I dearly love.

But as I turned to walk away, a tear fell from my eye,
for all life, I’d always thought I didn’t want to die.
I had so much to live for and so much yet to do.
it seemed almost impossible that I was leaving you.
I thought of all the love we shared and all the fun we had.
If I could relive yesterday, I thought, just for a while,
I’d say goodbye and hug you and maybe see you smile.

But then I fully realised that this could never be,
for emptiness and memories would take the place of me.
And when I thought of worldly things that I’d miss come tomorrow.
I thought of you, and when I did, my heart was filled with sorrow.

But when I walked through Heaven’s gates, I felt so much at home.
When God looked down and smiled at me, from His great golden throne,
He said, "This is eternity and all I’ve promised you,
Today your life on earth is past but here it’s starts anew.
I promise no tomorrow, but today will always last.
and since each day’s the same, there’s no longing for the past.

But you have been so faithful, so trusting, so true.
Though there were times you did some things you knew you shouldn’t do.
And you have been forgiven and now at last you’re free.
So won’t you come and take my hand and share my life with me?"

So if tomorrow starts without me, don’t think we’re far apart,
for every time you think of me, please know I’m in your heart.